Newborn Genomes ProgrammeHow can we make genome sequencing of newborns ethical and fair?Genomics England is co-designing and running an ethics-approved research pilot for the Newborn Genomes Progr…Learn MoreDeveloping a Public Engagement Strategy for the Liverpool Civic Data Cooperative How can the public be involved in decisions about research access to civic data?Since March 2020, the government's COPI notices have required NHS Digital to share confidential patient info…Learn MoreNational Digital Ethics Public PanelHow should Scotland best respond to the digital revolution in an ethical way?The National Digital Ethics Public Panel brought together a broadly representative group of 30 people from a…Learn MoreScottish Government Data Intelligence Network Engagement PlanExploring opportunities to deepen public engagement around data and Covid-19The Scottish Government's Data Intelligence Network (DIN) is a partnership of expertise from across the publ…Learn MoreUK citizens' jury on genome editing(When) should we allow genome editing? Involve is partnering with the Society and Ethics Research Group, Connecting Science at the Wellcome Genome…Learn MoreJust Public AlgorithmsHow can we improve the governance of algorithms used to deliver public services? Data analytics and algorithms are increasingly being used across public services in the UK to categorise cit…Learn MoreData Trust PilotHow can data be shared whilst maintaining trust?Data trusts have captured the imagination of the data and technology community as a way to increase access t…Learn MoreData sharing for public benefitWhen is it acceptable for government to share personal data?Local government is uncertain about the way the public balances the benefits and risks inherent in the shari…Learn MoreThe Guardian Gene GapHow can journalism be informed by different community voices?The development of gene editing technology is starting to raise major questions for not just what we can do…Learn More Pages1 2 Last Last
